Wednesday, May 2, 2012


When: Saturday, May 12, 10:30 a.m. - 2 p.m. 
Where: Knights of Columbus Park, 50 Rue Saint Francois, Florissant, MO
Directions:  From I-270 & Lindbergh: Go north on Lindbergh to Washington St.  Turn right on on Washington.  Go to 2nd traffic light and turn left on St. Ferdinand.  Go to 1st traffic light.  Turn left on St. Francois.  This will dead end into the parking lot.
What: Dancing... lunch... and activities for the entire family!
Admission:  FREE!

Click here to RSVP

NDSS ON PINTEREST!


Click here to find NDSS on Pinterest.


[this is a super great way to add awareness! and i know a lot of you have fabulous little pinterest boards so let's add NDSS!]

TIMES SQUARE VIDEO - SUBMIT YOUR PHOTO!



Visit www.buddywalk.org to get involved and be inspired!

Give Us Your Best Shot: Submit Your Photo for the 2012 Times Square Video

On Saturday, September 22, NDSS will kick off Down Syndrome Awareness Month and the New York City Buddy Walk® with a video presentation featuring more than 200 individuals with Down syndrome from across the world that in the heart of Times Square. We invite you to submit a photo for this one-of-a-kind feature presentation!  The contest will run from May 1 - July 13 and winners will be contacted the week of August 1. 

Click here for more information about the Times Square Video.

Click here to submit your photo. 




ACHIEVING a BETTER LIFE EXPERIENCE [ABLE ACT]



The Achieving a Better Life Experience (ABLE) Act (H.R. 3423/S.1872) continues to gain support in both the  U.S. House and Senate. Cosponsors have reached 141 in the House and 16 in the Senate. The ABLE Act still needs more cosponsors, and we need your help!
  
On April 25, NDSS joined forces with many other national disability organizations to host National ABLE Act Call-In Day to build additional support for this important legislation. Thank you to all who called their Senators and Representatives and encouraged them to become cosponsors. For those who haven't yet, it's not too late to take action and reach out! 

Please see the lists below to find out if your elected officials have already signed on.
Click here to view the list of Senate cosponsors.
Click here to view the list of House cosponsors.

Here are three ways that you can make a difference right now:

1) Call and/or write your Senators and Representative using the provided templates and ask them to cosponsor the ABLE Act now. If they are already cosponsors, reach out to thank them!
- Click here to view the call-in template.
- Click here to view the email template.

2) Set up a meeting with your Senator and/or Representative during their state/district work period.
- Click here to view the Senate/House's Congressional calendar so you can find out when your members of Congress are back in your state/district.
- Click here for more information and a letter template to set up a district meeting. (If you cannot copy the template from the PDF, click here to visit the ABLE Act section of our website and click "ABLE Act District Meeting Request Template" for a Word version.)

3) Participate in the ABLE Act Webinar co-hosted by NDSS and Dads Appreciating Down Syndrome (D.A.D.S.) National on May 22 at 7:00 PM ET. 
- Click here to register.

NDSS WEBINAR - "How You Can Help Us Pass the ABLE Act Today."



NDSS WEBINAR MAY 22 @ 7 PM ET
"How You Can Help Us Pass the ABLE Act Today."

In May, NDSS will co-host a webinar with Dads Appreciating Down Syndrome (D.A.D.S.) National titled "How You Can Help Us Pass the ABLE Act Today." The webinar will be on Tuesday, May 22 at 7:00 PM ET. The Achieving a Better Life Experience (ABLE) Act (S. 1872/HR 3423), when passed into law, will provide individuals with Down syndrome and their families the same types of flexible savings tools that all other Americans have through college savings accounts, health savings accounts and individual retirement accounts.

Speakers will include Steve Beck, NDSS Board Member and VP of the Down Syndrome Association of Northern Virginia; Joe Meares, D.A.D.S. National Chair; Sara Hart Weir, NDSS VP of Advocacy and Affiliate Relations and Darin Yoder, D.A.D.S. National - National Public Policy Advisor. The Down syndrome community has a real chance at getting the ABLE Act signed into law this year but we still need your help! Participate in this webinar and learn how you can do your part to pass this bill today.

Click here to register.